NCT02585635
Risk Models to Optimise Prophylaxis Schedules in Children With Haemophilia
Sponsored by Neuroscience Research Australia
The MOrPH study is designed to identify optimal prophylaxis schedules for children with haemophilia. This involves development of combined pharmacokinetic and pharmacodynamic models. Interpretation of model outputs will be informed by two surveys. The first will survey families of children with haemophilia to ascertain families' values and preferences concerning prophylaxis schedules. The second will survey haemophilia physicians to ascertain the criteria physicians use to prescribe prophylaxis schedules.
Inclusion Criteria: * People will be eligible to participate in the family survey if they have haemophilia A or B and are aged between 14 and 17 years, or if they are the parent of a child (\< 18 years) with haemophilia * People will be eligible to participate in the physician survey if they are physicians currently practising in paediatric haemophilia treatment centres. Exclusion Criteria: * Unable to communicate effectively in English.
Identity-resolution confidence concerns registry/entity resolution and does not determine clinical eligibility.
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