NCT06306508
Effect of Parental Attitude on Functional and Physical Level of Children With Cystic Fibrosis
Sponsored by Halic University
Some parents may be more protective of children with CF due to concerns about worsening of the disease due to infection, which can affect their functional level. The goal of this observational study is to learn about the family's protective approach to the functioning and disease course of children with cystic fibrosis (CF) to determine whether there are possible negative effects. There will be an alternative viewpoint offered to clinicians regarding the management of CF with outputs of this study.
* Inclusion Criteria: 1. For a child 1. To be between 7-17 years old, 2. Living with family or caregiver. 2. For the parent 1. Being the mother, father or other caregiver of the child, 2. Voluntarily agreeing to participate in the study on behalf of both the child and oneself. * Exclusion Criteria: 1. For the child 1. Having cognitive impairment that would prevent participation in the study or being able to cooperate with the measurements and not being able to adapt, 2. History of previous lung or liver transplantation, 3. History of hospitalization within the last 1 month, 4. Having a neurological or orthopedic comorbidity that affects mobility. 2. For the parent 1. Having cognitive impairment at a level that prevents participation in the study 2. Not living in the same household with the child.
Haliç University
Istanbul, Eyup, Turkey (Türkiye)
Identity-resolution confidence concerns registry/entity resolution and does not determine clinical eligibility.
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